PKD Foundation…a promise made long ago


I generally don't share personal stuff, not in my business and not in my personal life either. Although I enjoy talking with people I'm a better listener than a sharer. However, I've had this in my heart for a while now. This is the story of my daughter and the miracle that allowed her to live.

My daughter's kidneys at 6 months gestation were like little blackberries. Literally, the ultrasound showed her kidneys to be so full of cysts that they looked like blackberries with all the bumps. What this meant for her was that she would either die in the womb or live a very short and miserable life until her kidneys failed - an average of three months. 

Can you imagine receiving this type of news, when you are expecting just to see your baby and how she was coming along? It was devastating!

Her condition is called PKD or Polycystic kidney disease (PKD). It is a genetic disease (passed from an affected parent to their child) causing uncontrolled growth of cysts in the kidney eventually leading to kidney failure. If you've ever asked me why we only have one child I've probably told you we had a difficult pregnancy, emotionally easier for me to say this than to explain what actually happened and the risk of having it happen with a second child. So yeah, only one for us.

After trying to process the calamity of her condition and investigating what we could do (which was nothing but to wait for her to die) I made myself the promise to donate to the PKD Foundation in order to help develop a cure. I didn't want other families to go through this without a better outlook than to see your child die.

By God's mercy, my daughter was spared. For three months we monitored her health closely, every ultrasound showing us her inevitable fate until one day the ultrasound showed clear kidneys! We couldn't believe it, the doctor couldn't believe it (this is an incurable disease), the only explanation was God's mercy had spared our child. Once she was born she underwent further testing and there were no lesions of any type of damage to her kidneys. She is now 16 years old and a thriving teenager.

Why do I tell you all of this? My promise has always been on the back of my mind. Even though we did not have to suffer from this disease there are still many families that have gone through or are going through the worst of it. I donate every chance I get and want to ask you guys if you have an opportunity, either donate here: https://support.pkdcure.org/bloomingtreesoaps, make people aware of this horrible disease or purchase something from us this weekend - we will be donating 15% of all sales to the cause.

Every little bit counts!

xoxo

Irene

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